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Pseudo-Obstruction Research Trust (PORT)

5 months ago By Denise Newman

I am looking for help raising awareness and funds to go into research for a charity call Pseudo-Obstruction Research Trust (PORT)

Dear All,
I am a lifelong member and player of Blackburn Rugby club. I am looking for help raising awareness and funds to go into research for a charity call Pseudo-Obstruction Research Trust (PORT)
My 9 year old son suffers from this rare condition and as it is so rare there is no research done into the condition.
I would like to give some background information that has led to me making this request.

I am very lucky to have a little boy who is literally 1 in 742,000!
Charlie suffers from Chronic Intestinal Pseudo-Obstruction along with approximately 120 people in the UK and around 1,000 worldwide. This is a life-threatening and sometimes life-limiting disease. We are losing young children who suffer.
Suffering from this condition means he has never really eaten a full meal, he has undergone 26 operations in his 9 years and faces a life of uncertainty and issues.
He is tube fed a small amount directly into his stomach and also through a tube that goes into his bloodstream. This cuts out the digestion process but gives him the calories and all the nutrition he needs as his bowel could not handle a normal diet.

This charity was set up by family and friends, past and present of the sufferers, to research this bowel condition. Here is a link to a promotional video we had made of our son Charlie for you to look at and also the charity's website details. Please have a watch.
Charlie’s Day https://youtu.be/CURX0euRMy8
Fight Song https://www.youtube.com/watch?time_continue=1&v=qwt1XgbvReo

We had sold out but have just had 2 tables become available. We are holding a black-tie event on 30th June 2018 at Blackburn Rovers Football Club, Ewood Park, Blackburn.
We still have tickets available for anyone that would like to attend. The price per person is £75. This includes a 4-course meal, FREE Bar, live entertainment, and DJ. Tables of 10 can be reserved or smaller numbers can also be accommodated.

If you cannot attend but would like to help with either raffle or auction prizes please do get in touch. If you have a business that could support as headline sponsor again please get in touch.
I look forward to your reply.
Kind regards
Kilian Fitzsimmons-Wilson
Charlies Dad 3rd Team Captain 07739 458 774 kilianwilson@hotmail.com

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Updated 10:48 - 23 May 2018 by Denise Newman

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