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Hello My Name Is Kendall and I have Cloves Syndrome

2 months ago By Ray Smithson

CLOVES syndrome is an extremely rare overgrowth syndrome as only 50 people have it in the world , with complex vascular anomalies.

CLOVES syndrome affects people with various symptoms, ranging from mild fatty soft-tissue tumors to vascular malformations encompassing the spine or internal organs.

Evening all!
I’m organising a charity event for the 29th of June at Clifton allwhites raising funds for 3 year old Kendall who has cloves syndrome.

I’ve added the poster if any of you are interested. It’s 5-11pm, between 5-7 there will be lots for the kids including meeting
Elsa and Anna, and male superheroes......

If your interested message me Sashim Karimjee on the Clifton FC facebook site

Children’s wristband £5.... includes everything there.
Adults £10 and includes a full Indian meal deal

Updated 21:12 - 21 Jun 2018 by Ray Smithson

Where next?

1965 Archive Photograph to Holland Update We now have a couple more names added to the archive photograph of the first trip to Holland in 1965


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